Once again, the Me Fine Foundation had the fortune to partner with Mindy Sopher’s Nonprofit & Leadership Development (COMM 466) class at North Carolina State University during the fall 2018 semester. Rima Patel, Abby Haywood, and Sophie Ritchie became a part of our team in mid-August.
Nonprofit Leadership and Development “is a service-learning course in which students will be expected to make a 20-hour commitment to service in a local nonprofit organization. Students will critically examine theories of communication and leadership with concentration on issues pertaining to nonprofits such as working with executive boards, volunteer management, and resource development.”
Each student managed their own project over the course of the three months. Rima conducted research so Me Fine can better understand the underlying issues impacting families the organization serves through the Financial Assistance Program. Sophie built out profiles using publicly-available information so we can better understand the motivations, interests, and behaviors of individuals who support our work. Abby helped us to catalog the hundreds of varying diagnoses we have received and then identify potential pharmaceutical prospects whose treatments focus on those very critical and chronic medical conditions.
We asked each of them to share what they learned from their time with us, in their class, and about the nonprofit sector. Check out their responses below:
We wish each of them all of the best in their continued studies as well as the personal and professional opportunities to come! You can see what recommendations they provided us during their final presentation by reviewing their presentation here.
FOR IMMEDIATE RELEASE
October 28, 2018
New Orleans Night Raises $220k for Critically Ill Children, Families at Triangle Hospitals
Event supports Me Fine Foundation’s mission to provide financial assistance, emotional support
RALEIGH: More than 375 attendees filled the two floors of the City Club in downtown Raleigh last night to raise more than $220,000 for critically ill children and families served by the Me Fine Foundation at the nonprofit’s 2018 Gala. Me Fine’s annual Gala generates nearly 30 percent of the organization’s revenues.
In its 11th year, funding from this year’s Gala, sponsored by Centrifuge Media, will provide financial assistance and emotional support to families with children receiving treatment at WakeMed, UNC, or Duke Children’s Hospitals. Me Fine assists with expenses incurred after a child’s diagnosis which can accumulate throughout the duration of treatment: hospital parking, gas, and meals. Additionally, the organization assists families with ongoing major life expenses where a lack of payment may put a family at risk for eviction, food insecurity, or utility disconnection.
“Our annual Gala ensures that we can meet the constant flow of referrals from our hospital partners to address the individual needs of families in crisis,” said Joey Powell, executive director. “Through the generous outpouring of support from attendees at last night’s event, we will be able to do even more for families today and in the future.”
Dr. Jim Helm of WakeMed Health & Hospitals received the 2018 “Hero For Life” Award, which is Me Fine’s highest honor. The award recognizes those who go above and beyond to help critically ill kids and families in ways that align with Me Fine’s mission. Dr. Benny Joyner, Division Chief of Pediatric Critical Care Medicine and the Clinical Director of the Clinical Skills and Patient Simulation Center at the NC Children’s Hospital, moved the crowd with his first-hand experiences working with children for the majority of his career.
“This year’s event was a powerful testament to our community’s shared values,” said Colleen McGowan, gala Chair and board member. “People recognize the difference that their dollar can make. We’re grateful to all of our sponsors and attendees, as well as all those who invested in the event from afar.”
Changing Lives sponsors included Carolina Wealth Partners, Thompson GMC-Buick, and Blue Water Spa. Sunbelt Rentals supported the event at the Building Communities level. The full list of sponsors can be found at mefinegala.com.
Me Fine Foundation is a nonprofit organization committed to ensuring families whose children face a devastating medical crisis are able to receive financial assistance, emotional support and other necessary resources to sustain the loss of income due to the dramatic change in lifestyle while undergoing treatment at Duke, UNC, or WakeMed Children’s Hospitals. For more information, please call (919) 202-0086 or visit mefinefoundation.org.
Renewed partnership with Me Fine Foundation to benefit families at Triangle-area hospitals
Building on the success of last season’s partnership, the Carolina Hurricanes and former Hurricanes player and team ambassador Erik Cole will once again join the Me Fine Foundation to provide families of critically ill children a suite to all Hurricanes home games for the 2018 – 2019 season.
Cole recognizes the reality these children and parents face on a daily basis as they endure treatments for life-threatening medical conditions. For him, this partnership centers around providing a dedicated time and space for families to have a night for themselves.
“This is all about giving the child a chance to have fun. This is also about giving parents the chance to see their child get to be a kid again.”
Cole will donate the 14-person suite, which includes food and beverage, parking passes and a private bathroom, which is optimal for patients with compromised immune systems. Cole, who serves as the Hurricanes team ambassador, played 892 career NHL games with the Hurricanes, Oilers, Canadiens, Stars and Red Wings. He recorded 532 points (265g, 267a) in his career and captured the Stanley Cup championship with the Hurricanes in 2006. The Oswego, NY, native appeared in 557 career games with Carolina, and ranks in the top 10 in franchise history in games played, points (363), hat tricks (5) and shorthanded goals (8).
Reflecting on this renewed partnership for the 2018 – 2019 season, Cole responded that this decision came with zero hesitations: “If there is something you can do to lessen the burden on families in these situations, then why would you not want to do it?”
“Erik really has come to embody what Me Fine is about: He’s using his resources to directly make a profound positive impact on the children in our community who are stricken with chronic illness and facing a difficult treatment path.” Me Fine Foundation Executive Director Joey Powell said. “Even after hockey, he’s still the consummate teammate.”
Since 2004, the Me Fine Foundation has provided both financial and emotional support to over 1,500 critically ill children and their families. Me Fine works with families from across North Carolina whose children are being treated by Duke Children’s Medical Center, UNC Children’s Hospital, or WakeMed Children’s Hospital. The organization benefits individuals of every race, diagnosis, religious affiliation and economic status. The Me Fine Foundation is a previous Carolina Hurricanes Foundation grant recipient and has received $25,000 in Game Changer Grants since 2014.
The Carolina Hurricanes Foundation strives to meet the health and educational needs of children, with a focus on underserved populations, and to strengthen youth hockey in our community. During the 2017-18 season, the Foundation donated a total of $495,000 in cash grants to 24 different children’s charities and youth hockey organizations in North Carolina. In 2018, the Kids ‘N Community Foundation was rebranded as the Carolina Hurricanes Foundation to further align with the team and the shared mission to make a positive, collective impact in the community.
I first heard about the Me Fine Foundation back in mid-2011. I was serving on my then-employer’s internal foundation board, a pass-through fundraising group that supported various charities as requested by our colleagues. I’d reached out to a friend/fraternity brother, asking him to support a golf-a-thon that I was playing in to benefit a Florida foundation that provides financial support for families with children fighting brain cancer. Josh Swindell, a longtime Me Fine board member and then Board Chair, said to me “If you like that Foundation, I need to tell you about Me Fine.” By the end of lunch, I was signed up to join the Me Fine Board of Directors the following January.
There are many deserving organizations here in the Triangle, but few I’ve found whose mission and purpose is so clear. Children get sick through no fault of their own. Insurance helps cover the costs of treatment, and there are many foundations providing research grants towards finding better ways to diagnose, treat, and even cure some terrible diseases. But what about the cost of receiving care? Driving to and from the hospital; taking time off work to be with your child; eating meals out and staying at hotels just so you can keep family together. Or the emotional toll a serious illness can take on the child, their siblings, parents, and extended families: Who helps with that?
Me Fine does.
I’m blessed to have two beautiful, healthy children. We’ve never spent a night in the hospital, and I hope we never have to. The truth is: I have a hard time even conceiving what it would be like if one of them received a serious diagnosis – the anxiety and fear and desperation. Add to that financial stress, and it’s truly unimaginable.
Unfortunately, families face that every day at Duke, UNC, and WakeMed Children’s Hospitals. One of those was the Lee family. You may be familiar with Folden’s story, and that of his amazing mother, Lori Lee. Me Fine’s name recalls young Folden’s answer when asked how he was doing today, before he ultimately lost his battle with leukemia. Our mission represents Lori’s selfless vision – solving problems faced by the families she met during Folden’s treatment.
Lori is the most altruistic, inspiring person I’ve ever known. She’s lost a son to leukemia. She’s fought and beaten cancer multiple times herself. She’s been a patient advocate, a grief counselor, a fundraiser, and public speaker. All of this in hopes of making life a little easier for families she may never meet. During my six years serving on our board, my primary purpose has been to ensure that Lori’s hard work and determination to help these families can continue long after her and my time on the board has passed.
To that end, I’m quite proud of what’s been accomplished during my tenure. Our staff has expanded and is well-equipped to meet Me Fine’s evolving needs. Our board is stronger, and we’ve created more opportunities to leverage non-board member contributions through our committee structure. Our resources have grown; our annual budget today is more than double what it was in 2012 (thanks to generous supporters like those reading this letter). And as a Foundation, we’ve matured – what once was a hands in the dirt, “little engine that could,” has evolved into a highly-regarded, well known nonprofit here in our community.
At the same time, the need for what we do has also grown. We served more families in 2017 than any year before, and are on track to serve many more in 2018. We expanded into WakeMed Children’s Hospital,and are supporting more emotional support programs than at any time in our history.
I hope there will come a day when Me Fine is no longer needed, when childhood disease is a thing of the past, and families never face the same tragedy that Lori and her family did with Folden. But, that day is not today and is unlikely to be tomorrow. Until then, I’ll continue to strongly support Me Fine with my time, energy, and financial contributions. My time on the board may be coming to an end, but my passion for Me Fine has never been stronger.
Thank you to Me Fine – our board members, our staff, and our supporters – for the opportunity to help shape and grow such an amazing cause. It has truly been among the most rewarding experiences of my life. And thank you in advance on behalf of all the families who we will serve in the months and years ahead through your continued hard work and dedication. The best is yet to come.
Jake Connors has served six years on the Me Fine Foundation Board of Directors, including Board Chair in 2016. Currently, he chairs the Development Committee. Outside of Me Fine, Jake is a Senior Director with Compass Financial Partners.
The ability to share our stories allows us to connect with each other and discover that we often have more in common than we might think. We at Me Fine have begun to ask families if they would be willing to allow us a glimpse into their current lives as their child undergoes treatment for a critical medical condition. It is our honor and privilege to provide such a platform for these families, and we’re grateful for their courage in putting pen to paper and inviting us all in to their world during such a difficult time.
In Their Words: Brandon’s Story
Our life was like any other. Normal, hectic, and fun.
However, in the midst of our lives, our oldest daughter started doing things that weren’t like her: getting tired, not wanting to run with friends. Once we got the official diagnosis (B-Cell Acute Lymphoblastic Leukemia), it was punch in the gut.
The pause button, in a lot of ways, has been hit in our lives. We make the majority of our decisions now based on what’s best in terms of her treatment, her exposure to anyone else (to keep her from being sick), and what resources we have to cover what we need.
There are so many things that I could say but getting financial support and encouragement is a big one because there are a lot of incidentals and needs that come up that many have helped us with. Gas to and from; items at the store; food: all are significant when shuffling back and forth to the hospital.
Taking care of vehicles, having someone to help with the small things so we can focus on the big things, which is our daughter and beating Leukemia. Those who have helped us say it’s a really small thing, but no. It’s a very big deal to us! We are so blessed and thankful to God for those who help us in any way.
Story authored by Brandon, whose daughter is currently receiving treatment for B-Cell Acute Lymphoblastic Leukemia at UNC Children’s Hospital. Their family lives in Raleigh. To make a donation to ensure families like Brandon’s receive the financial assistance and emotional supports they need throughout their journey, click here.
On May 13th, the Me Fine Foundation launched a special campaign that we called #MeFineCares. It was no coincidence that the campaign’s start date coincided with Mother’s Day. Mother’s Day is a time when many of us express gratitude for the mothers, grandmothers, aunts, cousins, spouses, and other caregivers who have shaped our lives for the better.
Caregivers. We hear that word in our vernacular, but how often do we take stock of what the word truly means? It is a role that literally means to “give care.” We may describe a person as “caring” to reflect their generous spirit. But, caring is more than an adjective. To care is to take action; it encapsulates the effort of doing something.
When your child receives a diagnosis of a serious medical condition, your role as a caregiver takes on a whole new meaning. Additional stressors and anxieties often build. This can put parents, who are already doing whatever they can to raise their child to be a good person, in a perpetual state of fear. Some parents may experience guilt. We’re conditioned to believe that it is our job to protect our child. How could this happen? What did we do wrong?
The answer is nothing. Life-threatening medical conditions often come with no warning. Without knowing what’s next, parents forge ahead for their child and the rest of the family. This can come at the peril of their own mental, physical, emotional, and spiritual well-being. This can also take a toll on the household’s financial health.
Based on the personal experiences of our founder – Lori – and the founder of Striving For More – Diane – which Me Fine acquired in 2013, it became crystal clear that caregivers needed more support than they were currently receiving in the healthcare setting. Assistance can come as payments for vehicle repairs so families have reliable transportation to get to and from the hospital. Help can be in the form of a dedicated support group for parents whose infants are receiving treatment in the Neonatal Intensive Care Units (NICUs). Caring looks like providing families with the means so they can stay closer to the hospital, whether in a Ronald McDonald House or a long-term stay hotel. Closer shelter to the hospital allows families to be present with their child longer and more frequently.
This is the crux of the #MeFineCares campaign. Each dollar raised through June 30th will be put towards providing care for the resilient caregivers in the families we serve. Me Fine remains committed to providing each family with the assistance they have identified. We work together with hospital social workers on each referral and fulfill the request directly to the third party. Our goal is to avoid adding any additional burdens or red tape for families, so they can focus their attention on what really matters.
We set an ambitious goal to raise an additional $25,000 for assistance during our #MeFineCares campaign. With fewer than 24 hours left, we’re still short of that goal. But, with your willingness to show care, we can not only meet it but exceed it. That’s not a win for Me Fine: That’s a win for critically ill children, their caregivers, and our broader communities. Make your impact today: http://bit.ly/MeFineCares2018
“When you have more than you need, you have a duty to do what you can for both the people you know and for strangers.”
This is one of the underlying principles that guides Bomani (Bo) Jones in his approach to philanthropy.
You may have heard of Bo – or at least heard his voice – from his career on the radio and now in the podcast world. His educational pursuits first brought him to the Triangle; his initial career kept him here. He first met Joey Powell, Me Fine’s current Executive Director, at their first “office” jobs at ESPN.
Since his initial days hosting The Three Hour Lunch Break and Sports Saturday with Bomani Jones in Raleigh and then launching his own show from Durham (The Morning Jones), Bo’s broadcasting career took him south of the Tar Heel state to Florida and most recently transplanted him in the Northeast. Still, Bo’s heart remains tied to the Triangle region.
“The Triangle was the only place I chose to live,” Bo noted. “Even after I’ve been gone for years, I still maintain a strong personal connection to the community.”
One way that Bo has maintained that relationship is by supporting the mission of the Me Fine Foundation. While his first introduction to the organization came about because of working with Joey, Bo felt like his contributions were having a clear impact on people’s lives.
“I know that Me Fine is paying someone’s light bill or providing a hotel room so a family can stay close to the hospital. That individual support gives a family in crisis immediate assistance, which is important to me. Sometimes, causes are so big and complex that it doesn’t feel like you as a donor can make a difference. Me Fine shows me how my gift translates into something tangible and real for families dealing with such unimaginable situations.”
With a background and multiple degrees in Economics, Bo’s career has taken him down a slightly different path now as the host of his latest show High Noon (on ESPN Radio with co-host Pablo Torre) as well as the The Right Time podcast. Yet, Bo’s wish to participate in the public commentary space has come to fruition. Asked what the biggest conception people hold about working on a radio show, Bo offered that working as a radio broadcaster is a lot of work.
“We don’t just show up and start talking each day. You have to put in a lot of hours to prepare for a three hour program. And, you always have to be up. There isn’t much wiggle room for an off or bad day. But, that helps me to stay focused on doing the best I can every day.”
It is clear to use that Bo’s mindset of doing all he can to be there for his community transcends his show and spills over into his role as a Me Fine supporter.
Are you interested in being profiled for a Supporter Spotlight segment? Please contact Katie Todd at email@example.com. A big thank you to Bomani Jones for not only his financial support but his willingness to share his story! If you would like to become a Me Fine supporter, you can make a one-time gift or join as a monthly sustainer here.
FOR IMMEDIATE RELEASE
June 18, 2018
Contact: Katie Todd; 919-244-5868; firstname.lastname@example.org
THOMPSON GMC-BUICK PROVIDING HOPE FOR CRITICALLY ILL CHILDREN, FAMILIES
Dealership announces sponsorship of Me Fine Foundation’s vehicle repair program
RALEIGH: Today, the Me Fine Foundation is pleased to announce that Thompson GMC-Buick will be providing $10,000 in support as the main sponsor of the nonprofit’s vehicle assistance program.
Me Fine provides financial assistance and emotional support programs to families whose child has been diagnosed with a critical or life-threatening medical condition and is receiving treatment at Duke, UNC, or WakeMed Children’s Hospitals. Nearly 20 percent of the organization’s Family Assistance funding goes to helping families pay for vehicle expenses each year.
“Parents and caregivers must have safe, dependable transportation throughout their child’s treatment,” said Joey Powell, executive director of Me Fine. “In fact, one of the biggest inhibitors to pediatric follow-up care is a lack of reliable transportation. Thompson Buick-GMC’s support gives us the resources to help even more families combat this additional out-of-pocket cost.”
“Thompson GMC-Buick wants people in our community to have what they need to thrive, whether that looks like a new car or financial assistance for fixing a vehicle vital to their child’s medical treatment. We are proud to establish this commitment with Me Fine and the families navigating these unimaginable circumstances,” said Lee Maynor, general service manager of Thompson Automotive Group.
Caring for a sick child comes with numerous costs that are not covered by any insurance program. Parents may be forced to quit jobs in order to provide care for their child. Unfortunately, bills continue to pile up. When a car breaks down during this time, families may not have access to the same financial resources to make necessary repairs. This is where a nonprofit like Me Fine can assist.
In 2017, Me Fine provided nearly $100,000 in financial assistance to 211 families. More than $17,000 of that went towards vehicle repairs and other related car costs.
Me Fine Foundation is a nonprofit organization committed to ensuring families whose children face a devastating medical crisis are able to receive financial assistance, emotional support and other necessary resources to sustain the loss of income due to the dramatic change in lifestyle while undergoing treatment at Duke, UNC, or WakeMed Children’s Hospitals. For more information, visit mefinefoundation.org.
In our series, “Faces of Me Fine,” we highlight the dedicated people who make sure the organization achieves its mission to support critically ill children and their families at Duke, UNC, and WakeMed Children’s Hospitals. Meet Miss Barbara, a former science teacher who has brought her passion and ingenuity to supporting Second Hope Shop and the impact this community-based thrift store has on children and families throughout North Carolina.
Miss Barbara may claim to be retired, but her time at the Second Hope Shop says otherwise. She officially joined the store’s team in August 2014 after seeing an advertisement for a part-time position. While she doesn’t have a official title, Mary Angel and the rest of the staff have dubbed her the Chief Pricer.
Miss Barbara retired from teaching high school science in Wayne County. Throughout her career, she taught all of the science classes offered, including Biology, Physical Sciences, and Chemistry. What was her favorite?
“Chemistry,” she responded. “There’s an answer there. You just have to know how to get to it.”
She’s applied this same methodology to her role as Chief Pricer of Second Hope Shop. She researches current prices based on the condition and age of donated items in order to generate the appropriate price per the store’s guidelines. Maryssa (profiled here) helps her price newer items.
“I want the prices to be both competitive and to help raise money for the families that the Me Fine Foundation supports.”
Why did Miss Barbara become a teacher? She started at East Carolina University studying medical technology. Ironically, she detested chemistry in high school. But, she found science fascinating and wanted to stoke that curiosity for the next generation.
“Science is constantly changing,” she shared. “It’s important to give students real world examples.”
Miss Barbara and the Second Hope Shop do this same thing with customers at the thrift store: how their purchases go towards supporting families with critically ill children at Duke, UNC, and WakeMed Children’s Hospitals.
The Princeton team looks to Miss Barbara for guidance, leadership, and laughter. It’s clear that this former teacher remains committed to caring for children and families. While it may not be teaching the scientific method or reviewing the periodic table of elements, Miss Barbara’s passion of helping others to see possibilities is clear here at the Second Hope Shop and throughout the community.
Me Fine’s Second Hope Shop is located at 5100 US Hwy 70 East in Princeton, North Carolina. You can find updates on sales and specials on the store’s Facebook page or give them a call at 919-202-0445.
This month marks the 5-year anniversary of the merger between Striving for More and Me Fine Foundation. Next month will be 10 years since our 9-year-old daughter, Colleen died from cancer, and the experience that led to my purpose. Although it has been proven that psychosocial care improves outcomes and quality of life, many hospitals were struggling to provide this care. Insurance companies were not reimbursing hospitals to provide things like sibling support, opportunities for social interaction, and medical procedure preparation. I began my mission to address the gaps.
Today, even though these services and others are cited as standards of care in the pediatric population, many centers continue to struggle to fund them. They depend on the support of organizations like Me Fine to develop and fund programs that can be used as important resources for their youngest patients and their families. Members of the psychosocial care teams work directly with Me Fine to support financial and emotional needs of their patients. I am incredibly proud that Colleen’s legacy lives on and continues to grow through the continual support of Me Fine supporters, board members, staff, and volunteers.
The mission of Me Fine continues to remain close to my heart. Our dedication to their purpose drives us to continue to donate year after year in honor of Colleen and the other children who experience critical illness.
Perhaps there is a child you know who has benefited from their programs, perhaps your family is looking for ways to celebrate the health and well-being of your own children, perhaps you see the need as strongly as I do. Whatever your reason for donating, you can rest assured that critically ill children located where you live, work and play will benefit from your family’s generosity and my family would be incredibly grateful.