Stories of Hope
Our story starts with the passing of my son Mason in 2002. Mason had Pompe Disease, a rare metabolic disease that affects the muscles and heart. Babies usually don’t live to a year old! Mason lived for 7 ½ months before GOD took him home in 2002. (June 8, 2001 – January 26, 2002) Mason was a blessing that would later shed light and hope for our future!
During Me Fine’s Hope for the Holiday projects, many of “our” families are touched by receiving. A local girl, Madison Beyer, has enjoyed the blessings of giving. Madison and her family knew that they wanted to help a family at Christmas, but they didn’t know how they were going to raise the funds. Madison came to her parents with an idea: In lieu of gifts for her birthday, she wanted to receive donations so that a “Me Fine” family could have Christmas.
Anabella Cole Curry was born on November 10, 2009 weighing 6 lbs, 7 ozs and a length of 20.5 inches. At 3:00 am on the 11th, she was life-flighted to UNC Children’s Hospital, where she spent the first two days of her life. At three days old, she was transported to Duke Children’s Hospital. There, we were told the extent of her condition.
In November 2008 my husband and I were given the scare of our lives. Just home with a two month old baby, our 16 month old daughter, Olivia, began realizing that her new baby brother was here for keeps and retreated a bit, or so I thought. Two months later, during Olivia’s 18 month check up, we learned her iron levels were severely low and the next day she was sent to UNC Children’s Hospital’s Pediatric Oncology Department where she received an emergency blood transfusion.
Our daughter Ashlynn Elise Hill is a patient at UNC Children’s Hospital. At birth, Ashlynn was born with 2 holes in her heart, a heart murmur, and Horner’s syndrome. At 2 months old, Ashlynn went into cardiac arrest. After many tests and 2 different hospitals, UNC admitted Ashlynn for observation. She was diagnosed with sick sinus syndrome.
Terry was a very outgoing, popular teen who was very athletic. He broke three track records the spring of 2004. Terry always looked forward to being on the football team once he made it to eighth grade. In August 2004, Terry went to school the first two days of his eighth grade year with excitement that he could be on the team. When he woke up on the following day of school, his gums were swollen so large that we could barely see his teeth.
Let me tell you about my best buddy Isaiah. He lives in Asparta, N.C. and loves nothing better than hanging out all day with his â€œPa Paâ€. His best friends are his dogs Chico and Jo Jo. I fell in love with this kid the first time I met him at Duke.
My son was diagnosed with a rare very large cancerous brain tumor in April of 07. We were rushed by jet from Charlotte to Duke, and that became home for us for the next 7 months.
Kian’s transplant was a great success. However, even with this success, they ended up staying in Durham at the Ronald McDonald House for almost a year.
A look into the personal journal of a mother whose ten-year-old daughter has Neuroblastoma.
Imagine the fun and excitement of Christmas day completely forgotten as your teenage son collapses in the floor and has to be rushed to the hospital! This is what happened to Korey LeFeat’s family on Christmas 2005.
Matt was a very active boy, who loved sports and especially bowling. Matt went through many months of headaches in the Spring of 2003. He went to a migraine clinic where they told me he was making this up and didn’t want to go to school. I know that wasn’t my Matt. He was always tired and pale. Finally in June 2003, I rushed him to the hospital because he was having a violent headache and looked so very pale.
We came to know about the Me Fine Foundation after our daughter, Maci was diagnosed with AML Leukemia in March 2005. From the beginning, Me Fine was there with us, and for us. They provided financial help during our journey. They helped with the mortgage payment, light bill, gas, food, and medicine. You name it, they were there. They even provided Christmas for our family. When we found ourselves in need, Me Fine was always there.